Een hart voor A.L.S. collects financial resources for scientific research. The driving forces behind this project are Alain and Katrien Verspecht. Duvel-Moortgat is delighted to support their initiative.
Interview in De Bierkoerier, the Duvel Moortgat staff magazine (March 2015)
'Amyotrophic Lateral Sclerosis' is an incurable disease. The muscles gradually stop receiving impulses from the brain. This results in a loss of bodily functions, from walking to breathing. The non-profit association works with Professor Wim Robberecht of the Catholic University of Leuven, a world authority on research into ALS.
Alain Verspecht: “In 2000, together with my close friend Francis Adams, I started ‘The Concept Group’, an IT company specialising in the computerisation of wholesale and retail firms in various sectors. As COO, I was responsible for a team of about thirty people. It was a fascinating and challenging job, with a lot of social contacts and professional challenges.”
What were the first symptoms pointing to ALS?
Katrien: “Caring for my husband is a very intensive job. The nights are difficult because Alain can’t change position by himself. Our morning routine, when with the help of a nurse I take care of personal hygiene, feed and dress Alain, takes a great deal out of me.
Despite the help of family and friends, there are still all sorts of household chores to do. Because of Alain’s illness, we have had to make a lot of changes to the house: bathroom facilities, an office that we now use as a bedroom and wider doors inside. Buying aids to provide care requires an extra budget: electronic wheelchair, shower-toilet chair, breathing equipment, hoist, cough assistant (device that helps bring up mucus), adapted car with lift, adjustable bed, etc. Not to mention the fact that we also work together on my own further personal development.
In that respect, I’ll soon be starting Groovy Dogs, a web store specialising in dog food and accessories. In addition, I’m the secretary and treasurer of the non-profit association Een hart voor A.L.S., plus the stepmother of Julie (18) and Robbe (11). So it’s a busy schedule.”
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